Complementary and alternative medicines and cannabis use among individuals with erythropoietic protoporphyria. (2026)

Erythropoietic Protoporphyria (EPP) and X-Linked Protoporphyria (XLP) are rare, inherited disorders that present with severe cutaneous phototoxicity. Pain from phototoxic reactions does not respond to analgesics, and there is a need to identify therapies to address EPP-pain. Anecdotal reports from i